Today is not a good day

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Today is not a good day. My legs don’t work properly and my knees are like two overripe oranges, fit to burst, spongy, about to turn bad. And my shoulder has gone. A net of taut knots has replaced it, pulling me in the wrong direction. And my neck has a shard of painful rock driven into the side of it. And I look fine.

I look 32, something close to slender, healthy, fit and I can’t move for the pain. I’m tired. The heavy soreness sucking me down. My bed is my uncomfortable partner. Invisible condition. Chronic pain. Ehlers Danlos III. Empty meaningless words, I wish I could flesh them out with the weight of my limbs, with the ache, so you could see it. Just once. Today is not a good day.


3 Comments on Today is not a good day

  1. Aaron
    29/04/2013 at 8:45 pm (9 years ago)

    I short but great post, with the brevity adding to how well it gets the point across. I’m just saddened that it’s about something so unpleasant, and that your body ties down your mind so much and so often. Best wishes, A.

  2. Angela Williams
    29/04/2013 at 4:21 pm (9 years ago)

    Right back at ya, Lynne x

  3. Lynne Hughes
    29/04/2013 at 3:53 pm (9 years ago)

    Really feel for you today. I know how hard an “invisible illness” can be. If it’s not obvious, like a lost limb for example, people assume that you just need to “pull yourself together” and “get a grip”. Both phrases I’ve heard as a narcolepsy sufferer. It doesn’t do much to help right now, I know, but I’m thinking of you and sending best wishes xxx

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